Seizure/Epilepsy
Written by a student, N.F:
My teacher asked me to write a poem,
A poem about a memory. I chuckled a little at her request, because my memories are so sketchy You see, I have seizures and they cause me to forget, where I’ve been and things I’ve done. And then there are the medicines, that finish off the job. I remember things in bits and pieces, not whole stories or events. Like snapshots in an album, my life in pictures. A favorite toy. A childhood friend. A girl I used to like. A Christmas gift. A summer swim. My Mom’s lasagna. Playing with my sister and brother. Both of my grandmothers who have passed away. Snapshots of my 16 years, locked away inside of my head. I know they’re in there somewhere, I try not to let it bother me, because I know that what my brain can’t recall, My heart will. Please let us know if you have another great resource to be added to this page. If links don't work - let us know. Remember you can always try going to the "root" of the link. |
Seizure/Epilepsy
November is Seizure Awareness Month Epilepsy Awareness Resources.com Visit www.GetSeizureSmart.org
• Take the quiz and then download it to give to everyone you know.
• Watch the Get Seizure Smart public service announcement and share the link.
• Print out our 30 Days/30 Ways to Take Action sheet
To recieve an Epilepsy Newsletter, Please contact: Epilepsy Foundation | 8301 Professional Place, East | Landover, Maryland 20785 | 800.213.5821 E-mail the Epilepsy Foundation at [email protected]
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Epilepsy and Seizures 24/7~365 Helpline
Call us 800-332-1000 and select option 1. ve a voicemail message.
If you're a caregiver or a person with epilepsy, what should you do if you're considering a seizure alert dog as part of your treatment plan?
Learn more here: https://bit.ly/3m4XwSF
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Epilepsy Support Group meets at McMillan Library in Wisconsin Rapids on the 3rd Wednesday of the month at 10:00am.
Ann Hubbard's group - so contact her for more specifics ([email protected]). 800-924-9932
Antigo 1st Thursday - Bimonthly
Appleton 4 Tuesday
GreenBay 1st Wednesday
Lacrosse Last Tuesday - Bimonthly
Madison every Thursday
Stevens Point 3rt Friday
Wausau 2nc Monday
Epilepsy Foundation Heart of Wisconsin 1004 Frist street Suite 5Stevens Point, WI 54481-2627
715-341-5811 800-924-9932 [email protected]
http://www.epilepsy.com/heart-of-wisconsin
Epileptologists are experts in seizures and seizure disorders, anticonvulsants, and special situations involving
seizures.
Seizure-Alert Dogs--Just the Facts, Hold the Media Hype
http://www.epilepsy.com/articles/ar_1084289240
Embrace Smartwatches We are still accepting applications to receive a free Embrace watch loaded with the seizure detector app. Track your activity, stress and overall balance. Get an alert when an unusual event happens, like a convulsive seizure, warning them and their loved ones. Find out more at
http://www.epilepsy.com/article/2015/2/applications-now-being-accepted-embrace-watch?utm_source=Epilepsy+Foundation&utm_campaign=2d3254ffb2-Epilepsy_News_4_15_15&utm_medium=email&utm_term=0_cf0feb6500-2d3254ffb2-12579305
SAMi sleep activity monitor for families who have child that can have or do have potentially dangerous seizure at night.
http://www.epilepsy.com/release/2014/7/video-mother-child-living-severe-epilepsy-meets-creators-life-changing-device?utm_source=Epilepsy+Foundation&utm_campaign=c2df9c5aeb-Epilepsy_News_7_9_14&utm_medium=email&utm_term=0_cf0feb6500-c2df9c5aeb-12579305
November is Seizure Awareness Month Epilepsy Awareness Resources.com Visit www.GetSeizureSmart.org
• Take the quiz and then download it to give to everyone you know.
• Watch the Get Seizure Smart public service announcement and share the link.
• Print out our 30 Days/30 Ways to Take Action sheet
To recieve an Epilepsy Newsletter, Please contact: Epilepsy Foundation | 8301 Professional Place, East | Landover, Maryland 20785 | 800.213.5821 E-mail the Epilepsy Foundation at [email protected]
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Epilepsy and Seizures 24/7~365 Helpline
Call us 800-332-1000 and select option 1. ve a voicemail message.
- en Español 1-866-748-8008
- Use the online form at epilepsy.com/helpline.
- Email us at [email protected]. Questions submitted online or through email are typically answered the next business day.
If you're a caregiver or a person with epilepsy, what should you do if you're considering a seizure alert dog as part of your treatment plan?
Learn more here: https://bit.ly/3m4XwSF
---
Epilepsy Support Group meets at McMillan Library in Wisconsin Rapids on the 3rd Wednesday of the month at 10:00am.
Ann Hubbard's group - so contact her for more specifics ([email protected]). 800-924-9932
Antigo 1st Thursday - Bimonthly
Appleton 4 Tuesday
GreenBay 1st Wednesday
Lacrosse Last Tuesday - Bimonthly
Madison every Thursday
Stevens Point 3rt Friday
Wausau 2nc Monday
Epilepsy Foundation Heart of Wisconsin 1004 Frist street Suite 5Stevens Point, WI 54481-2627
715-341-5811 800-924-9932 [email protected]
http://www.epilepsy.com/heart-of-wisconsin
Epileptologists are experts in seizures and seizure disorders, anticonvulsants, and special situations involving
seizures.
Seizure-Alert Dogs--Just the Facts, Hold the Media Hype
http://www.epilepsy.com/articles/ar_1084289240
Embrace Smartwatches We are still accepting applications to receive a free Embrace watch loaded with the seizure detector app. Track your activity, stress and overall balance. Get an alert when an unusual event happens, like a convulsive seizure, warning them and their loved ones. Find out more at
http://www.epilepsy.com/article/2015/2/applications-now-being-accepted-embrace-watch?utm_source=Epilepsy+Foundation&utm_campaign=2d3254ffb2-Epilepsy_News_4_15_15&utm_medium=email&utm_term=0_cf0feb6500-2d3254ffb2-12579305
SAMi sleep activity monitor for families who have child that can have or do have potentially dangerous seizure at night.
http://www.epilepsy.com/release/2014/7/video-mother-child-living-severe-epilepsy-meets-creators-life-changing-device?utm_source=Epilepsy+Foundation&utm_campaign=c2df9c5aeb-Epilepsy_News_7_9_14&utm_medium=email&utm_term=0_cf0feb6500-c2df9c5aeb-12579305
Epilepsy or Seizure DisorderEpilepsy and seizures affect over 2.7 million Americans of all
ages. There are 315,000 students in the United States with epilepsy, with 45,000 new cases diagnosed annually1. Epilepsy is a neurological condition that from time to time produces brief disturbances in the normal electrical functions of the brain. Normal brain function is made possible by millions of tiny electrical charges passing between nerve cells in the brain and to all parts of the body. When someone has epilepsy, this normal pattern may be interrupted by intermittent bursts of electrical energy that are much more intense than usual. The electrical burst may affect a person's consciousness, bodily movements, or sensations for a few seconds to minutes. These physical changes are called seizure activity. The characteristic of seizure activity determines the types of seizure and the treatment. When a student experiences a seizure, it is important for school personnel to document the movements before, during, and after the event, progression of symptoms, and the duration of activity. Known causes of seizure activity include head injuries, brain tumors, lead poisoning, maldevelopment of the brain, and genetic and infectious illnesses. In fully half of the cases, no cause can be found. Repeated seizure activity is called epilepsy. The primary treatment for seizure disorders are oral medications called anticonvulsant medications. For the majority of students with epilepsy, medication controls the seizure activity. Other treatments for seizure include vagal nerve stimulators, ketogenic diet, and surgery. When convulsive seizure activity is prolonged, it is called status epilepticus. Students may suffer brain damage or die if seizure activity is prolonged and not interrupted. Prolonged seizure activity may be interrupted by administration of rectal valium. After rectal valium administration for prolonged seizure activity, emergency medical services or 911 should be called, and the student should be monitored for seizure activity and respiratory depression. School personnel need to know how to recognize seizures and how to respond in a seizure emergency. School nurses can develop an emergency action plan, train school personnel in first aid, and provide assistance in the administration of daily and emergency medications for students with seizure disorder. RESOURCES: http://www.epilepsyfoundation.org/aboutepilepsy/index.cfm/professionals Questionnaire for Parents and Students with Seizures Seizure Observation Record Seizure Action Plan Fact Sheets on Epilepsy Dental Health & Epilepsy A Parents Guild - When Seizures are not the only problem - Learning and Developmental Forms: Video demonstration of the use of Diastat AcuDial http://www.diastat.com/2-Administer/# Sample seizure disorder policy from Madison Metropolitan School District References: 1. Epilepsy Foundation’s Managing Students with Seizures, 2005 ============================= Children with seizures, work with children who have seizures, or are impacted by seizures yourself - check out the SEE Program website. There are many helpful articles and other resources to help with understanding and treating epilepsy. http://www.theseeprogram.com/ 10 things every pediatrician should know about children in foster care http://www.aap.org/fostercare/PDFs/HFCA_10Things.pdf Author: Moira Szilagyi, MD, PhD, FAAP American Academy of Pediatrics October 2009 At the 2009 National Conference & Exhibition of the American Academy of Pediatrics, Moira Szilagyi, MD, PhD, FAAP gave a presentation on the health needs of children in foster care. In her presentation, Dr. Szilagyi reminds the audience that children in foster care are children with special health care needs due to the high prevalence of trauma, medical neglect, and emotional stressors in this population. Although there are many challenges inherent to coordinating care for these children -- appropriate consent for medical procedures, complete medical records, coordinating care, maintaining confidentiality, and adequate health insurance -- doctors can help provide stability and safety by establishing a medical home that offers compassionate and well-coordinated care. -------------------------------------------------------------------------------- Driving and Transportation http://www.epilepsy.com/get-help/staying-safe/driving-and-transportation Wisconsin Driving Law re: Epilepsy http://www.epilepsy.com/driving-laws/2008886 A person with epilepsy may obtain a driver's license if the individual has been seizure-free for three months prior to the application date. There are no exceptions to this 3-month seizure-free period [WIS. ADMIN. CODE TRANS. § 112.10(3)(c)]. The Department may request a doctor's report describing the applicant's condition. [WIS. ADMIN. CODE TRANS. § 112.10]. The Department may require follow-up examinations and reports by a physician as a condition for issuing a license [WIS. ADMIN. CODE TRANS.§ 112.10(2); WIS. STAT. ANN. § 343.16(5)]. The medical information submitted is reviewed by the Bureau of Driver's Licensing Medical Review Unit. Restricted licenses are available. [WIS. ADMIN. CODE TRANS. § 112.16]. The Department may require a person with a recurring condition to submit to period medical evaluations. [§ 112.17]. A person may request an appearance before a review board if his or her license is denied or canceled. The review board may assess the person's medical history and the type or class of license requested when reviewing the Department's licensing decision. Go to the website for more information: http://www.epilepsy.com/driving-laws/2008886 |
ResourcesService Animal Booklet Release Postponed Recently
the Southwest ADA Center released a message about a new publication, Service Animals and Emotional Support Animals, that was available for distribution. At this time distribution of this publication in both hard copy and electronic formats has been postponed pending further federal review. For more information contact: The Southwest ADA Center 1-800-949-4232 or email [email protected]. www.southwestada.org North Central Children and Youth with Special Health Care Needs www.northernregionalcenter.org Phone 715-261-1900 Toll-Free 1-866-640-4106 Ask for: Julia Stavran This program is out of the Marathon County Health Department Lakeview Professional Plaza 1200 Lake View Drive, Room 200 Wausau WI 54403-6797 FAX: 715-261-1901 State wide CYSHCN Regional Centers: http://www.dhs.wisconsin.gov/health/children/RegionalCenters/index.htm ACCESS is a quick and easy way for people in Wisconsin to get answers to questions about health and nutrition programs. Information on the different kinds of Medicaid type programming Access Wisconsin https://access.wisconsin.gov/access/ * This a web resource that can help you see if your child is eligible… just another “tool”. *** Do not stop looking if any one of these resources are telling you NO! Need Legal Help? Call on the Legal Defense Fund The Foundation’s Jeanne A. Carpenter Epilepsy Legal Defense Fund helps people with epilepsy fight unfair treatment based on their condition in employment, education, the criminal justice system and other areas. The Legal Defense Fund provides individuals with epilepsy experiencing discrimination guidance on their legal rights, and when necessary, referrals to one of its attorneys for direct legal representation on a case. http://www.epilepsyfoundation.org/resources/epilepsy/index.cfm/ or call 1-800-332-1000 to learn more about these services. Great Books: Taking Seizures to School Chris Plays Basketball by Todd Filipps Seizure Man In the Classroom Beyond the Storm My Friend Emily - a story about Epilepsy and Friendship by Susanne M. Swanson Lee the Rabbit w/Epilepsy By Coral Schwarts ---------------------------------------------- Epilepsy Foundation and Epilepsy Therapy project MERGE TO SUPPORT PEOPLE WITH EPILEPSY New foundation will drive awareness, supportive care and accelerate new therapies for millions of people living with seizures - New Mission: ***stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy through efforts including education advocacy and research to accelerate ideas into therapies. ***Epilepsy Therapy Project will continue supporting scientific and clinical research with an emphasis on translational medicine and new product development under the Epilepsy Foundation umbrella. ***Patient care website www.epilepsy.com will serve as the premier source of accurate information regarding epilepsy and seizures. “Epilepsy is more prevalent than autism, multiple sclerosis, cerebral palsy and Parkinson’s disease combined – and takes thousands of lives each year. We are dedicated to helping address the public health dimensions associated with seizure disorders, including access to care, challenges in school, Sudden Unexplained Death in Epilepsy (SUDEP) and other devastating consequences of uncontrolled seizures, furthering opportunities for gainful employment and independent living.” About Epilepsy When a person has two or more unprovoked seizures, they have epilepsy, which affects nearly three million people in the United States and 65 million people worldwide. This year, another 200,000 people in our country will be diagnosed with epilepsy. Despite all available treatments, 30 to 40 percent of people with epilepsy continue to experience uncontrolled seizures while many more experience less than optimal seizure control. Media Contacts: Epilepsy Foundation Kenneth Lowenberg [email protected] 301-918-3773 BCC Partners Karen L. Bergman [email protected] 650-575-1509 Epilepsy Foundation 8301 Professional Place Landover MD 20785 Tel.: 1-800-332-1000 www.epilepsyfoundation.org ---------------------------------------------------------------------- Camp Oz on the shores of the St. Croix River may seem like your typical camp complete with cabins, a camp counselor’s office, a mess hall, and volleyball and basketball courts. But at Camp Oz most of the children have something in common — they suffer from seizures, and some have epilepsy. Usually in June - so check it out early. http://minnesota.cbslocal.com/2014/06/20/camp-oz-caters-to-kids-with-epilepsy/?utm_source=Epilepsy+Foundation&utm_campaign=ed56e669e2-Epilepsy_News_6_25_14&utm_medium=email&utm_term=0_cf0feb6500-ed56e669e2-12579305 |
PIER is an informational site. It is not a legal services agency and cannot provide legal advice or legal representation. Any information contained on this site is not intended as legal or medical advice but only as an informational resource. This web site was created to inform and educate. The content should not be used as a substitute for professional medical advice, recommendations, diagnosis or treatment.
You are encouraged to confirm all information with other sources and a physician. If you have health concerns, please call or see a qualified health care provider without delay. .
We do not endorse any treatments, providers, or product information in this site.
As with any program - we strongly encourage you to thoroughly check out references. .
You are encouraged to confirm all information with other sources and a physician. If you have health concerns, please call or see a qualified health care provider without delay. .
We do not endorse any treatments, providers, or product information in this site.
As with any program - we strongly encourage you to thoroughly check out references. .